General Information

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Tunisia (French)

Saturday, December 12th, 2009

Xeroderma pigmentosum: http://www.xp-tunisie.org.tn/

France (French)

Sunday, December 6th, 2009

Albinisme: http://www.genespoir.org/ Amylose : http://www.amylose.asso.fr Ataxie-telangiectasie: http://asso.orpha.net/APRAT/__PP__0.html Bébé collodion: http://www.anips.net/ Behcet (maladie de): http://www.association-behcet.org//index.html Cutis laxa : http://www.orpha.net/nestasso/cutislax Epidermolyse bulleuse: http://www.langenony.fr/ Hidradénite Suppurée (Maladie de Verneuil) :  http://www.vmmv.fr/, http://www.afrh.fr/ Ichthyoses : http://www.anips.net/ Lyell : http://amalyste.free.fr Lupus érythémateux :http://www.orpha.net/nestasso/LFhttp://lupus.france.chez-alice.fr Marfan : http://www.vivremarfan.org Neurofibromatose (Maladie de Recklinghausen) : http://www.anrfrance.orghttp://www.neurofibromatosis-network.org/ Noonan : http://groups.msn.com/noonanfrance/ Pemphigus: http://www.pemphigus.asso.fr/ Pemphigoïde bulleuse: http://www.pemphigus.asso.fr/ […]

Canada (English)

Sunday, December 6th, 2009

Bullous pemphigoid:  http://www.pemphigus.ca/e/ Dermatitis: http://www.eczemahelp.ca/index.html Dystrophic epidermolysis bullosa: http://http://www.debracanada.org/ Eczema: http://www.eczemahelp.ca/index.html Lupus erythematosus: http://www.lupuscanada.org/ Lymphedema: http://www.infolympho.ca/en/index.en.htm Lymphovenous disorders (Lymphedema): http://www.lymphovenous-canada.ca/ Melanoma: http://www.melanoma.ca/ Pemphigus: http://www.pemphigus.ca/e/ Pityriasis rubra pilaris: http://www.prp-support.org/ Porphyria: http://www.cpf-inc.ca/ Psoriasis: http://www.psoriasissociety.org/ Systemic sclerosis(Scleroderma): http://www.scleroderma.ca/index.php

Help us be complete

Sunday, December 6th, 2009

If you know any patient support group* -which is present on the web, but not in our lists -which is in English Please send us an email to [email protected]. We will correct this as soon as possible. Thank you The administrators *We define a patient support group as being a non-for profit association, a charity or […]

Laser Surgery – Introduction

Monday, November 30th, 2009

Laser Surgery Laser stands for “Light Amplification by Stimulated Emission of Radiation”. Because they work by converting electrical energy into a parallel beam of intense bright light, lasers can cut, seal or vaporize tissue and blood vessels. The laser’s advantages come from its ability to produce a specific and powerful wavelength of light with a […]

Tetracyclines

Sunday, November 29th, 2009

Your doctor has prescribed a tetracycline for you: common tetracyclline include: Tetracycline Minocycline Doxycyline What are tetracyclines used for? Tetracyclines are used to treat infections. They are also used for the treatment of acne by suppressing the growth of the acne bacteria and decreasing the inflammation caused by the bacteria. How should I take tetracyclines? […]

Sunscreens

Sunday, November 29th, 2009

Dr Christophe Hsu – dermatologist. Geneva, Switzerland What are sunscreens used for? Excessive exposure to the ultraviolet, visible and infra-red radiation of the sun can cause sunburn, premature aging and wrinkling, brown pigmentation, hypersensitivity reactions to sunlight and skin cancer. Although your skin has its own natural defence mechanism, it’s not enough to prevent the […]

Oral Steroids

Sunday, November 29th, 2009

Oral Steroids Dr Christophe Hsu – dermatologist. Geneva, Switzerland Your doctor has just prescribed an oral steroid for you. What are steroids used for? Steroids are similar to the natural hormones produced in the body and are often used to supplement them to help your body fight against certain illness. They are used to relieve […]

Potassium permanganate

Sunday, November 29th, 2009

Dr Christophe HSU – dermatologist. Geneva, Switzerland Potassium Permanganate is a skin disinfectant and cleansing agent. It is used for soothing eczema (skin rash) and for drying wet wounds. Dissolve a few crystals in a container of water. Dilute it to a light purple colour solution. Then use this solution as follows: Bath: Fill a […]

Oral psoralen (methoxsalen)

Sunday, November 29th, 2009

Your doctor has prescribed methoxsalen for you. It is also known as meladinine. What is methoxsalen used for? Methoxsalen belongs to a group of medicines called psoralens. Methoxsalen increases your skin’s sensitivity to high intensity long wave ultraviolet light (UVA). It is used together with ultraviolet light in a treatment called PUVA to treat psoriasis […]

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